In the mid-1990s, Sherri Connell was living with multiple sclerosis and late-stage Lyme disease. She did not look sick, so people around her assumed she wasn’t. She started writing pamphlets just to help the people closest to her understand what was happening in her body. Those pamphlets became a name for something that had never had one. Her husband, Wayne, saw what she’d written and believed more people needed to hear it. In 2004 he incorporated what she’d started as a nonprofit. Ten years later, in 2014, the Invisible Disabilities® Association introduced Invisible Disabilities Week. This is its twelfth year.
“Eighty percent of those with invisible disabilities don’t use an assistive device, so how is someone to know?” That’s Wayne Connell, IDA’s founder, explaining why he pushed for Colorado’s disability symbol law. An officer meeting someone for ten seconds has almost nothing to go on. The symbol gives them one more real fact instead of a guess.
That Colorado law is real, and it’s a good example of what this week is about. The symbol works like an organ donor heart: voluntary, printed on the license, visible to an officer who runs the plate. An autistic person avoiding eye contact can get misread as disrespectful. A person mid-panic-attack can get misread as uncooperative. The symbol does not explain what someone is dealing with, it just tells an officer there is more going on than what they can see. Alaska and Utah have adopted a version of it too.
Looking fine and being fine are not the same thing, and most disabilities are the first one without being the second.
